Friday, May 28, 2010

The Envelope, Please....

...and the winner is, well, it's not the Myeloma!

Went to the Dr. today with the fam in tow: Dave, Mom and Dad. After waiting for about two hours, a couple rounds of charades and numerous mindless conversations to keep us occupied, the final verdict was revealed. The bone marrow biopsy showed no detectable cancer cells and the blood results showed a mere trace of protein! Dr. M calls this a complete response; although he is a bit reluctant to call it a remission (he explained that myeloma is not a type of cancer that lends itself to a true remission) the complete response to the chemo and the stem cell transplant is as good as it gets. Based on these results and my demographic, he expects that I'm in a good position to enjoy the 5-year average of myeloma inactivity.

Despite this great news, we have some decisions to make. Recent studies show that maintenance chemotherapy in the form of revlimid and velcade can prolong the inactivity period. This maintenance therapy would be administered for 18 months. The possible downfall of this aproach is that if and when the Myeloma relapses, my body may become immune to these frontline treatments. We have about a month to decide which route we want to take.

As far as other next steps, I will resume the Aredia therapy for my bones, continue to take an antibiotic and antiviral medication daily and have monthly blood work and Dr. visits. But, this weekend is focusing on celebration and thanks!

Oh, one other bit of good news, for the first time in months, my white blood cells are in the normal range.

The end to this journey's long chapter couldn't have come at a better time. The spiral bound notebook I've been carting around and writing Myeloma notes in for the last 13 months is down to just a few blank pages. Where could I possibly find another notebook that so resembles Myeloma cells under a microscope? It's time to place it in the archives of life.


  1. Melissa BMay 28, 2010

    YIPPEE!!!!! YAHOO!!!! WEE TO THE HAW!!!!
    I was thinking about you ALL day today!
    GREAT news Susan. I will have a glass of wine in your honor this weekend.....or maybe two glasses....this is big....heck, might just swig right from the bottle.

    Love ya girl!

    Celebrate, relax, unwind.....and the answers will come you.


  2. AnonymousMay 29, 2010

    Luv ya girl! So happy about the good news. Really funny about the notebook


  3. Only you could find a notebook that resembles myeloma cells! Yes, it's time to put that thing away.

    happy happy happy day : )

  4. Awesome news!
    I'd suggest putting a big :) on the last page of the notebook, and a word of thanks to your family for all their support.

  5. AnonymousMay 30, 2010

    Let's find a new notebook to write all the Happy Adventures that you will be having now that this experience is over and you have crossed the finish line with flying colors!

  6. So happy to hear your news. Celebration is definitely in order!!! I will continue to pray for your decisions about what therapy approaches to take. Have a wonderful Memorial Day.

  7. AnonymousJune 08, 2010

    That is great news! I am so happy for you!

  8. I just found your blog. As a fellow cancer survivor, my thoughts and prayers are with you.
    Also...Great Blog! You are a credit to the cancer blogging community. I have added you to my blogroll, “Cancer Blogs Lists” with over 1100 other personal cancer blogs at, a cancer networking site featuring a cancer book club, guest blogs, cancer resources, reviews and more.
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  9. Hi Susan

    You haven't posted for over a year and we were just wondering how you are. Not a how's your MM but a how's life treating you, what's the gossip sort of how are you.

    Any way hope everything is fab with you.

    Lorna and Mike

  10. I recently came across your blog and have been reading along. I thought I would leave my first comment. I don't know what to say except that I have enjoyed reading. Nice blog. I will keep visiting this blog very often.


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  11. Hello Susan:that is good news i wish you best of luck